Thursday, August 29, 2019
Friday, August 23, 2019
Aug 23rd
I finally had my port accessed! With the emla (numbing) cream & a great nurse, it felt no different than an iv stick. So now that we know it is working correctly, I will begin home infusions next week! Hopefully things continue to go smoothly. I hope everyone else is doing well too ❤
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March 11 2020
So update I'm still trying to be careful about what I say; because things could easily change at any moment. About a week or 2 ago, I c...
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So small victory & definitely not the answer, but I was able to get my gastro doc to rx me port access @ a center. So I'm now able t...
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Today is mast cell awareness day. Along with multiple other conditions, I am plagued with mast cell disease & mastocytosis enterocolitis...
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So I want to stop a sec & take note of a few things. Yes I am having a treacherous domino effect from a surgery that will likely be a di...