Today had it's ups & downs. Once everyone was on the same page with the med protocol, my pain has been for the most part tolerable. However, because of EDS I have really crappy veins that look good but actually role & collapse. After having 3 ivs fail & 4+ attempts to get an iv which resulted in blowing the vein or collapsing it, I insisted on another option. The only thing they would allow was a midline, which is a long catheter the goes up a main vein in your upper arm, so it stays in place longer, but it's not as risky as a picc line
Even though I was scared because everything vein related causes me severe pain, the procedure went smoothly. The rest of my day will probably be spent making up for the days of sleep I've lost due to pain.
They are starting to incline the bed to see how I tolerate it. Either tomorrow or Sunday, they will try to get me walking. Monday I will receive a blood patch & if all goes well, home on Tues.
Thank you all for keeping me in your thoughts & prayers!
Tuesday, June 18, 2019
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