So er on a Saturday @ duke: downright awful. We arrived around noon & didn't even get to a room until 8pm. Just sat in the lobby. The triage doc didn't listen & had photos done of my brain instead of my stomach; bc whenbshe heard shunt she automatically assumed brain. I was honestly at the front telling the to take my iv out when they said they'd get me a room. & finally when we spoke to several sets of docs, they said all was normal. Why did I have to wait around 8hrs to hear that? So we asked to discharge & @ 11pm the nurse come back & says they want one more ct. So we didn't get out of there until around 3am.
My er nurse was pretty absent in all of this. But she did do one thing for me that has confirmed my suspicions. They insisted on giving me a migraine cocktail of iv benadryl, compazine, & fluids (refused torodal). That actually took away the pain in my stomach. I believe that my mast cell (mcas) is rejecting the shunt. So I'm having a huge flare up of histamine driven pain, anywhere the shunt is. Of course that was rejected. However if I have to keep this in, I will have to find a way to make my mcas happy. If I don't I will go down the road of not eating again just to avoid any pain.
Anyway, to sum up I'm still alive & all is well I guess. I will be sleeping most of my day away.
Thanks for the concern & prayers!
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