July 6

So, as my story continues:

I had a follow up with my surgeon's pa. She removed my stitches & after consulting with him, agreed the pain I'm experiencing is due to mcas. 

Mast cell activation syndrome is where the cells in my body overstimulate to numerous things in my environment. This overstimulation creates a type of allergic reaction and it can appear in many different forms. I have high collections of mast cells in my stomach, some call is mastocytosis enterocolitis. So when my stomach come in contact with anything it doesn't agree with, I get reactions, like swelling which creates constipation & gastroparesis, diarrhea which creates dumping, reflux, severe pain, & much more .

The shunt that was put in me was made to travel through my stomach & drain to my pelvis, from what I understand. That's what explains the severe pain; my body doesn't agree with the shunt. The pain happens the majority of the time when I eat, but also randomly. 

My surgeon wants to wait it out & see if my stomach settles. This happened before with my gallbladder. So if I were to wait it out, I could easily lose 20-30lbs like last time.

Fortunately,  my cardiologist is willing to order me iv fluids & a benadryl drip so I can hopefully adjust to the shunt. 

That being said I will be getting a picc line or port for easy access. I'm leaning towards the port based off of others' experiences. 

They had no answer for me feeling dripping down my back. So I guess I'll just keep moving forward until my body says otherwise. 

Thanks everyone for your prayers & support! 

I'll continue to keep you updated.

& here are my 2 major scars I have now.